Today, approximately 10,000 rare diseases collectively affect as many as 400 million people around the world, and women leaders have long been at the forefront of bringing awareness to these diseases and driving change. This discussion will explore the resilience, determination, and ingenuity required to address the unique challenges in rare disease advocacy and research. Panelists will share their experiences in breaking barriers, leading patient-centered initiatives, and building collaborations that move the needle toward treatments and cures

Hear From:
Susan Dando, Executive Director of the Smith-Kingsmore Syndrome Foundation
Christina Miyake, Director, Genetics Arrhythmia Program and Associate Professor, Baylor College of Medicine; Associate Professor, Texas Children’s Hospital
Tania Simoncelli, Vice President of Science in Society at the Chan Zuckerberg Initiative
Tara Zier, Founder and CEO of The Stiff Person Syndrome Research Foundation
Moderator: Katie Couric, Award-Winning Journalist, #1 NYT Best-Selling Author, & Co-Founder, Katie Couric Media