Emily Reuben

Emily graduated from Oxford University with a degree in modern history, and was a reporter and anchor for Channel 4 News and CNN International.

After her eldest son Eli was diagnosed with Duchenne muscular dystrophy (DMD), she established the Duchenne Children’s Trust. It joined forces with the charity Joining Jack and is now Duchenne UK. Since 2012 they have spent more than £27 million on accelerating the search for treatments and a cure for DMD, and have set up groundbreaking and award-winning collaborations, turning Duchenne UK into the UK’s largest funder of DMD research.

Emily has advocated on behalf of patients around the world in meetings at the Food and Drug Administration, European Medicines Agency, Medicines and Healthcare products Regulatory Agency, and National Institute for Health and Care Excellence.

She was awarded an OBE (Officer of the Most Excellent Order of the British Empire) for her services to charity and to people with Duchenne muscular dystrophy in His Majesty The King’s Birthday Honours list in 2023.