Consumer Reports: What’s Our Health Data Worth?
Monday, March 14
11:00AM - 12:00PM
110 E 2nd St
Personal health data is a hot commodity—both to people who want to improve healthcare and those looking to cash in. In this panel, a Consumer Reports editor asks leading experts in health IT, privacy research, the online patient community, and consumer advocacy to illuminate the concept of “good” and “bad” data-sharing. Hear their solutions for balancing individuals' right to privacy with profound opportunities to serve the public good, advance science & innovation, and achieve a more effective health-care system. Takeaways include ideas for new regulations, systems, and best practices, plus actions we can all take to manage our valuable health data more responsibly.
Lucia Savage, JD
Chief Privacy Officer
US Dept Of Health And Human Services
Appointed Chief Privacy Officer at Office of the National Coordinator for Health Information Technology, Department of Health & Human Services in October 2014, Lucia Savage has been working on heal...Show the rest
Appointed Chief Privacy Officer at Office of the National Coordinator for Health Information Technology, Department of Health & Human Services in October 2014, Lucia Savage has been working on health privacy, transparency, and interoperable health information exchange since HIPAA was enacted in 1997. At ONC, she advises the National Coordinator and HHS on privacy and security for digital health information inside of HIPAA and outside of traditional healthcare. She previously served as General Counsel at Pacific Business Group on Health, working on such topics as healthcare transparency strategy, large data transactions, health information exchange, and All-Payer Claims Databases.
Interests include the intersections of behavioral economics, mHealth technology, consumer engagement in health, and function and dysfunction in the healthcare system.
Lucia has a BA with Honor from Mills College in Oakland, CA, and received her Juris Doctor summa cum laude from New York University School of Law.Hide the rest
Digital Health & Consumer Engagement Expert
Clear Voice Consulting
Lygeia Ricciardi is an expert and thought leader in consumer engagement and digital health. Her consulting practice focuses on helping companies from large multinationals to start ups position them...Show the rest
Lygeia Ricciardi is an expert and thought leader in consumer engagement and digital health. Her consulting practice focuses on helping companies from large multinationals to start ups position themselves strategically in the growing consumer digital health marketplace.
Previously Lygeia established and directed the Office of Consumer eHealth at ONC (Office of the National Coordinator for Health IT), leading the Blue Button Initiative and integrating the consumer perspective into Meaningful Use requirements and other federal policies and programs. She has also worked at startups, Harvard Business School, the Markle Foundation, and the Federal Communications Commission.
Lygeia has been voted among the “Top 10 Most Influential Women in Health IT” and featured by C-SPAN, the Wall Street Journal, and NPR.Hide the rest
VP Policy & Patient Safety
Patients Like Me
Sally Okun is the Vice President for Advocacy, Policy and Patient Safety at PatientsLikeMe in Cambridge, MA. She is responsible for the company's patient advocacy initiatives; she participates and ...Show the rest
Sally Okun is the Vice President for Advocacy, Policy and Patient Safety at PatientsLikeMe in Cambridge, MA. She is responsible for the company's patient advocacy initiatives; she participates and contributes to health policy discussions at the national and global level; and she is the company's liaison with government and regulatory agencies. Prior to joining PatientsLikeMe, Sally, a registered nurse, practiced as a palliative and end-of-life care specialist and contributed to multiple clinical, research, and educational projects for numerous clients including Brown University, Harvard Medical School, MA Department of Mental Health, Hospice Education Network and the Robert Wood Johnson Foundation. In addition, Sally participates on the Institute of Medicine's Roundtable on Value and Science Driven Healthcare. She was a National Library of Medicine Biomedical Informatics Fellow in 2010.Hide the rest
Sr Editor, Consumer Reports Best Buy Drugs