2016 Schedule

Interactive: March 11–15  •  Film: March 11–19  •  Music: March 15–20

Rare in Common: Building Rare Disease Communities

Saturday, March 12
12:30PM - 1:30PM

JW Marriott
Room 201-202
110 E 2nd St


Living with a rare disease is dangerous, depressing, and isolating. Digital innovation provides an incredible opportunity to unite isolated, extremely ill people together for a common cause—discovering fellowship, engendering hope, and taking action to pursue their health as individuals and as a collective.

Our session will explore the potential and impact of these digital communities with rare diseases in common from the point of view of multiple stakeholders: the people facing rare diseases themselves, companies dedicated to developing medicines for them, and thought leaders in rare disease communications.

Our video shows how rare disease patients are connecting & their strength

Hashtags: #sxsw #RareSXSW


Andra Stratton at SXSW

Andra Stratton

Co-Founder & Pres

Lipodystrophy United

Andra Stratton is a patient with familial partial lipodystrophy and an advocate for the global lipodystrophy community. She is a founding member and current President of Lipodystrophy United. Over...

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Daniel Yip at SXSW

Daniel Yip

Head of U S Mktg

Intercept Pharmaceuticals

Daniel Yip, WG’08 is currently the Head of U.S. Marketing at Intercept Pharmaceuticals, a biopharmaceutical company focused on developing innovative therapies for non-viral chronic liver diseases. ...

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Lisa Hazen at SXSW

Lisa Hazen

Chief Strategy Officer

Cambridge Biomarketing

Innovatively-driven business strategist, with more than 20 years of demonstrated expertise in managing multi-channel marketing and client services for organizations ranging from startups to global,...

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Sam Falsetti at SXSW

Sam Falsetti

Dir of Medical Strategy

Cambridge Biomarketing

Sam has more than a decade of drug development and commercialization experience in the pharmaceutical, academic, and biotech worlds. Prior to joining Cambridge BioMarketing he worked at the Publici...

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