Rare in Common: Building Rare Disease Communities

Living with a rare disease is dangerous, depressing, and isolating. Digital innovation provides an incredible opportunity to unite isolated, extremely ill people together for a common cause—discovering fellowship, engendering hope, and taking action to pursue their health as individuals and as a collective.
Our session will explore the potential and impact of these digital communities with rare diseases in common from the point of view of multiple stakeholders: the people facing rare diseases themselves, companies dedicated to developing medicines for them, and thought leaders in rare disease communications.
Our video shows how rare disease patients are connecting & their strength
Presenters

Andra Stratton
Co-Founder & Pres
Lipodystrophy United
Andra Stratton is a patient with familial partial lipodystrophy and an advocate for the global lipodystrophy community. She is a founding member and current President of Lipodystrophy United. Over...
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Daniel Yip
Head of U S Mktg
Intercept Pharmaceuticals
Daniel Yip, WG’08 is currently the Head of U.S. Marketing at Intercept Pharmaceuticals, a biopharmaceutical company focused on developing innovative therapies for non-viral chronic liver diseases. ...
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Lisa Hazen
Chief Strategy Officer
Cambridge Biomarketing
Innovatively-driven business strategist, with more than 20 years of demonstrated expertise in managing multi-channel marketing and client services for organizations ranging from startups to global,...
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Sam Falsetti
Dir of Medical Strategy
Cambridge Biomarketing
Sam has more than a decade of drug development and commercialization experience in the pharmaceutical, academic, and biotech worlds. Prior to joining Cambridge BioMarketing he worked at the Publici...
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