Terri Klein

As President and CEO at the National MPS Society, Terri has spent two decades in rare disease advocacy. Her expertise is in organizational development, multi-tier fund development, and patient advocacy. She has implemented multiple new rare disease healthcare access programs. She is a Board Director of the International MPS Network, CPAG, and the RDCRN. IMPSN focuses on global therapeutic access and humanitarian outreach. Terri is a founding member of the Mucolipidosis Research Collaborative Network. Her advocacy efforts have led to many awards including Hometown Hero (2), WORLDSymposium Patient Advocacy Leadership, and Sanofi’s Torch Award. Her daughter Jennifer was diagnosed with Mucolipidosis Type III and is a patient scientist.